Thanks you all for your concern. I wrote the blog this time around because nurse Dom has been a little busy taking very good care of me!
I'm at the point with this last round that the chemo is doing it's job, leaving me weak, fatigued, out of breath, and dizzy with mouth sores, a sore throat and no taste. But I'm not in the hospital! The doctor gave me an extra antibiotic this last week to keep me from getting an infection and fever. I've spent most of the last two days dozing in bed. As much as I am comfortable withe the very caring and professional staff at Sloan, at least I'm at home without beeping IV stands, midnight vital raids, all the poking and proding - not to forget the hospital gowns that take me 20 minutes to get on.
The good news is I can start to feel the infusion from last Thursday working. So if "history" prevails, my numbers should come up today or tomorrow and I'll bounce back soon. Hopefully the red blood cells will come back too. The headache and tiredness is due to a low red blood cell/hemoglobin count. These usually go right away when I get transfused. I feel like a vampire when I say, and mean, "I wan't some blood!"
On Tuesday, Nov. 16th, I have a PET Scan and blood testing work scheduled in the Basking Ridge office. PET scan results should be in on Friday, Nov. 19th.
On Tuesday, Nov. 23, the doctors plan to start Round 5 of the chemo, but they expect they will be able to take it down from the "escalated" BEACOPP to the non-escalated BEACOPP chemo (we'll find out exactly what that means on the 23rd - and after!). They will also do a Pulmonary test on the 23rd (long day).
As I tell everyone, this is not the cancer making me feel this way, it's the chemo doing its job. It's all good. Now that this is all posted on the blog and out of the way, when I do communicate with all of you it can be about other things than me! I love hearing from you all and all the happenings in your lives.
Best wishes.
- Jen
I'm at the point with this last round that the chemo is doing it's job, leaving me weak, fatigued, out of breath, and dizzy with mouth sores, a sore throat and no taste. But I'm not in the hospital! The doctor gave me an extra antibiotic this last week to keep me from getting an infection and fever. I've spent most of the last two days dozing in bed. As much as I am comfortable withe the very caring and professional staff at Sloan, at least I'm at home without beeping IV stands, midnight vital raids, all the poking and proding - not to forget the hospital gowns that take me 20 minutes to get on.
The good news is I can start to feel the infusion from last Thursday working. So if "history" prevails, my numbers should come up today or tomorrow and I'll bounce back soon. Hopefully the red blood cells will come back too. The headache and tiredness is due to a low red blood cell/hemoglobin count. These usually go right away when I get transfused. I feel like a vampire when I say, and mean, "I wan't some blood!"
On Tuesday, Nov. 16th, I have a PET Scan and blood testing work scheduled in the Basking Ridge office. PET scan results should be in on Friday, Nov. 19th.
On Tuesday, Nov. 23, the doctors plan to start Round 5 of the chemo, but they expect they will be able to take it down from the "escalated" BEACOPP to the non-escalated BEACOPP chemo (we'll find out exactly what that means on the 23rd - and after!). They will also do a Pulmonary test on the 23rd (long day).
As I tell everyone, this is not the cancer making me feel this way, it's the chemo doing its job. It's all good. Now that this is all posted on the blog and out of the way, when I do communicate with all of you it can be about other things than me! I love hearing from you all and all the happenings in your lives.
Best wishes.
- Jen
Jen, so great to hear from you!!! You know we are all supporting you from afar. You and your family are troopers and quite an inspiration to all. Tons of love Aida and gang. xoxoxo
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